“I Don’t Like to Say ‘Disease’”- Céline Dion Discusses Comeback Amid Stiff Person Syndrome

Published 08/18/2026, 2:49 PM EDT

Celine Dion en concert au Centre Bell. Celine Don on Centre Bell stage for a concert event in Montreal 247679 2019-11-18 Montreal Canada Dion, Céline Copyright: xLaurencexLabatx STAR_247679_031

The music icon Céline Dion recently reflected on her journey with Stiff person syndrome as she discussed her long-awaited return to live performance. Céline Dion, who was diagnosed with the rare neurological condition in 2022 after experiencing symptoms for years, revealed that she prefers not to describe it as a “disease,” offering a glimpse into the mindset that has helped her navigate one of the most difficult periods of her life. As she prepares for a major Paris residency, the singer says she feels stronger and ready to reconnect with fans. 

Despite the challenges, Dion says her focus has remained on moving forward.

Why Céline Dion does not like calling it a disease

Speaking about stiff person syndrome in an interview with Harper's Bazaar, Céline Dion explained why she dislikes referring to the condition as a "disease." While acknowledging that it is a progressive condition, the singer said the word carries negative associations for her.

"I don't like to say 'disease.' Disease makes you go like this," Dion remarked before using a joke to explain what she meant.

"Kevin, you're such a disease," she added in elaboration. Her comments offered insight into the positive mindset she has tried to maintain throughout her health journey, even while facing significant physical challenges.

via Imago

Céline Dion also revealed in a recent conversation with Harper's Bazaar that she experienced symptoms for nearly 17 years before receiving an official diagnosis in 2022. During that time, she struggled with severe muscle spasms, pain, and other challenges that eventually affected her ability to perform. The condition ultimately forced her to cancel tours and step away from the spotlight as she focused on treatment and recovery.

The singer has previously shared her journey in the documentary I Am: Céline Dion, offering fans an unfiltered look at the physical and emotional toll of living with the rare disorder.

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Now, Dion is looking ahead rather than dwelling on the setbacks.

Céline Dion says she is ready to return to the stage

After a six-year hiatus from regular live performances, Céline Dion is preparing for a series of comeback shows in Paris beginning September 12, 2026. The residency comes after years of treatment that included physical therapy, vocal rehabilitation, medication, and immunotherapy designed to help manage her symptoms. According to Céline Dion, the hardest part of her health battle was being unable to perform for her fans.

She has described the upcoming concerts as an opportunity to reconnect with audiences who supported her throughout her recovery. She says she is feeling strong, excited, and ready for the challenge. That anticipation has extended beyond music, with fans also keeping an eye on her potential appearances at major entertainment events, including the 2026 Oscars red carpet.

via Imago

The announcement has already generated enormous interest, with demand for tickets underscoring the anticipation surrounding her return. For Dion, however, the comeback appears to be about far more than sold-out shows. It represents the latest step in a years-long journey defined by resilience, determination, and an unwavering love for performing.

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What are your thoughts on Céline Dion's return to the stage after her battle with stiff person syndrome? Let us know in the comments. 

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Yamini Vohra

64 articles

Yamini Vohra is an Entertainment Writer at Netflix Junkie. She is an English Honours graduate and Japanese language specialist with a love for drama, fashion, anime, music, and all things pop culture. When she's not working, you'll find her buried in a book, binge-watching vlogs, or being dramatically invested in the latest Netflix obsession.

Edited By: Adiba Nizami

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